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Oct
25
2011
Introducing “Writing/Fighting to Survive: The Rhetorical Strategies of Trauma Bloggers”Posted by Cat in as a scholar, grad grrl, the blogger in me, tags: blogging, dissertation, ptsd, traumaAs I reconstruct my dissertation–rewriting, revising, conducting a new research study–I’ve been considering many of the questions that reappear in my personal research journal. Since my research isn’t just my research, I can’t really make my research reflections fully public. Some of the things that I reflected on were concerns for specific participants (I include this here because I am conducting a new research study to complete my dissertation and have an entirely different set of research participants) or feelings that were at the time too personal to share with my blogging audience. I’m beginning to test out these boundaries now for several reasons. First, blogging is good for me. Seriously, it’s like vitamin C (and not the sunshine and vitamin C that I joke about being in clove cigarettes) and warm chamomile tea followed by a slug of peppermint oil to wake up your brain. As Father Ong (That’s Walter J. Ong, S.J. to all of you non-Purdue, non-rhet/comp geeks like me) so aptly put it “the writer’s audience is always a fiction.” So, while writing in my research journal, I am writing to a fictional audience just as you, my dear blog reader, are a fiction in your own way, writing in my blog makes the audience less fictional. Sure, I imagine you when I write and until I hit the “post” button that’s all you are–imagined readers. But the great thing about blogging is that in the moment that my post changes status from “draft” to “published,” you emerge from the ether along with my pixelated thoughts and voila–real readers who write back. And this brings me to… Here’s a piece of my dissertation introduction for your edification. Feedback is appreciated.
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Oct
21
2011
coming out of the closet … for World Mental Health DayPosted by Cat in chronic babe, tags: Bipolar Disorder, Mental health, ptsd, stigmaOkay, so I’m over a week late on this, since WMH Day was on the 11th, but better late than never, right? Actually, I’ve been thinking about posting this for a while now. I’ve posted some things about my disorders but feel most comfortable posting about my physical health. It seems that my physical health has always been fodder for public consumption. If nothing else, having physical problems seems so ordinary to me because I’ve always had them. When you’re born with cancer, doctors, nurses, hospitals, needles, and the like are normal parts of everyday life. Growing up, I had more “friends” who were health care professionals than I did kids my own age. When you’re a child with a compromised immune system, play dates are out of the question. Hell, even my own sister had to stay with my grandparents from time to time just in case she brought some germy germs home from school with her. Physical health problems were just a part of my life, like bedtime and CareBears. And (at least when you’re a child) physical health problems don’t carry the same stigma that I’ve found to be true as an adult woman. Sure there were some kids who were afraid they might “catch” my cancer or who made mean jokes, but adults mostly felt sorry for me and, not knowing that there was anything wrong with this, I accepted it along with the spinal taps, months of hospital incarcerations (as I now think of them, though at the time I was the beloved daughter of the pediatric oncology wing), blood draws, IVs, surgeries, and so on. Also, as a child with cancer you’re encouraged to talk about your illness and how you feel physically at any given moment. Doctors need that information and so do primary caregivers. When I was six and got the chicken pox, I just laid down without telling anyone and I was then hospitalized for over a week. So, saying “I don’t feel good” when you’re a recovering cancer patient generally means that you’re coming down with more than just the sniffles. Let’s just say that once you’ve had multiple spinal taps, you revise the meaning of pain. When med school students and interns are brought into your exam room on a regular basis so they can see the physical manifestations of one or more of your rare disorders, you kinda lose your shyness and to be frank, your physical problems seem to be part of the panopticon. Private and public get really blurry once you’ve had your ass hanging out of a dressing gown while twelve interns take turns looking at your eyes through a scope to see “this truly rare manifestation of Horner’s syndrome.” However, mental illness was a thing of silence and whispers. It was self-medicating relatives and suicides discussed as gun “accidents.” It was a little girl who would stay awake for three days straight before collapsing from exhaustion. I was nine years old and though it’s rare for children to exhibit signs of bipolar disorder at such a young age, my doctor and I determined that this was likely my first manic “episode.” It was my ninth birthday. Yes, that’s right; I have bipolar disorder. Now here’s the laugh riot: I’m fine disclosing the details of my physical health (we’ve been over that), and I’m even okay talking about my primary PTSD and chronic depression diagnoses, though I shy away from the details. I’m not as strong as the bloggers who are participating in my dissertation research, though they are helping me get stronger. So, back to the point: admitting that I’m bipolar is harder. I don’t even like telling healthcare professionals about it. I feel such a strong stigma surrounds it that I am quick to qualify that I have Bipolar-II and not Bipolar-I. In other words, I have hypomanic episodes rather than manic and since my diagnosis is Bipolar-I with melancholic features, I have more pronounced depressive episodes. I don’t get psychotic. I don’t go on crazy shopping or gambling binges. My mania is not dangerous; my depression is. When I’m in manic phase, I’m super-productive and while I might speak a little faster than usual and seem overly energetic, I am for the most part indistinguishable from the “average” person. My depression on the other hand tends towards anhedonia. Sometimes I just feel “down” but the bad times are when nothing makes me happy. And yes, I become suicidal. This is why I am on (and probably always will be on) medication. Even typing this scares me. I fear the stigma. I’m afraid that potential employers will read about this and my physical health problems and decide not to hire me. Maybe even decide not to interview me. In spite of the fact that there are laws against it, it still happens. Stigma happens. And I’m afraid of the stigma associated with mental illness. I don’t want to be defined by any of my illnesses. I want to be known as me not as some diagnostic code on a doctor’s office form. And that would be all well and good if I was the only one. But I’m not and coming out of the psychiatric closet is the first line of defense against stigma. I encourage you to come out of the closet like I have. Like my research participants have. Read Seaneen / The Secret Life of a Manic Depressive — Stigma of the Self and revolt against the stigma of the self.
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